Australia is currently in the midst of a reform called the National Disability Insurance Scheme or NDIS. This reflects a widespread national recognition that change is necessary for the way that we care for and support those with disabilities. This scheme rolls out in 2017 in New South Wales.
Under the NDIS, Australia’s funding will now be allocated to and controlled by the individual with a disability rather than by service organizations, which traditionally provided programs that individuals had to fit or miss out. This change will enable eligible people to structure their income and their activities around their goals.
This potentially opens new opportunities for people with disability, as they gain voice and control and are able to decide what matters to them as a person.
In recent years, there has been increasing recognition that “disability” is not a medical diagnosis, but a bio-psycho-social one, as in the World Health Organisation’s International Classification of Functioning (ICF). This just means that our understanding of what disability often reflects our social environment. Advocates suggest that the word “dis-ability” indicates a limitation on the abilities of a person whom it describes.
With the technology we now have available and use today, many physical limitations can be now overcome – for example, people who wear reading glasses probably don’t see themselves as “disabled” while those of us who use wheelchairs and are unable to get access to the places where we do ordinary life are likely to identify themselves as having a “disability.”
The 2006 United Nations Convention on the Rights of Persons with Disabilities or UNCRPD (http://www.un.org/disabilities/convention/conventionfull.shtml) has now been signed by approximately one hundred and forty nations, including Australia. The UNCRPD is a commitment from governments to change the way they provide support to citizens with disability. This is of particular importance because many studies link disability to low socioeconomic status or poverty.
The Centre for Disability Studies, an affiliate of The University of Sydney, has been involved in some of the preparatory work for the NDIS.
And one of the interesting findings is that Australia’s NDIS may mark the potential reappearance (or more regular appearance) of many people with lifelong disabilities into Australia’s religious communities.*
In 2015 at the L’Arche 50-year Symposium conference hosted by The Centre for Theology & Ministry at Melbourne University, Dr Vivienne Riches and Dr Tanya Riches presented their research, outlining the self-reported religious affiliation of 246 Australians with disability during a trial assessment. This was the basis for a scholarly article for AlphaCrucis’ AustralAsian Pentecostal Studies (APS).
Of our respondents, 14 (5.7%) replied that they had ‘no religious affiliation’. The majority of others (92.5%) identified themselves as ‘Christian’, with many specified denominational affiliations.
There was another theme in the interviews with people with disability – staff was largely unable (or, occasionally unwilling) to take people with disability to church. Support for religious activities on the weekends within group homes has been patchy at best.
Now under the new funding arrangements, a person with a disability could articulate their goals as involvement in a faith community, and receive adequate support in order to attend church every weekend, visit the venue each week for music rehearsals, or regularly attend youth or discipleship meetings.
In most Australian cities, this finally marks the arrival of a real weekend for many people with moderate to profound disabilities. The weekend is the time when most people do social things. But until now, support staff structured support around their schedules – and most carers worked midweek.
Interestingly, however, within much of the Christian church, the massive impending social changes that are possible with the NDIS have not even raised an eyebrow. Perhaps this highlights a disconnect with the needs of our community, How much do we really love our neighbour with a disability?
Jesus was highly interested in people with disability – especially those who were dis-abled by their society. Jesus did not see disability as a curse (John 9:1-3). He often healed symptoms, of course, but his main contribution was in solving the wider social problems related to the stigmatisation of people.
Paul wrote several times of his physical weakness (e.g. 2 Cor 12:7-10). The great leader Moses had a speech impediment (Exodus 4:10- 16). Elijah was depressed to the point of suicidality in 1 Kings 19. And one of the most beautiful stories of hospitality in the Bible is the way King David treated Mephibosheth, the son of his friend Jonathan, who had a physical impairment (in 2 Sam 9).
Perhaps the church needs to be more open and connected to the needs of the people within it? …. Is your church community ready to wholeheartedly say “Welcome home” to those rolling over to the NDIS in 2017?
*It’s worth saying that service provision is more difficult in Australia’s remote and Aboriginal and Torres Strait Islander communities, where services are often further away. In many of these communities, however, there are also different conceptions of what “disability” is, and also different views about social responsibilities to kin.